Reviewed in the United Kingdom on 22 October 2018. Do, I tried everything she suggested and more (low oxalate food, suppliments, saginil gel) and found myself gradually getting better so I continued with everything. It's so upsetting how long it takes to try things, with no definite cure on the horizon. In bocca al lupo. jsdchtml3('dc visalfa"=sa-trelhgir-b-totto m-fa-tsopcanoit "s=ferh"uroftcamnoisnaew7r602413515228 " apsalc nssca"=-noitrap"tne ps nassalc"=p-fatsowsna-re-fa -tsopsna-rewotlgg-fa etbof-nmurb-fa ntrof-p--mumir yraocennUdetcesnOsr"ylpsiRnoidnaps naps vidalc"=ssfard-wodpo"n=di fa"pord-odr-nwnopse-es6024131-5"2285 idlc vssa-fa"=op-nipc-ntbsolci enolc-b-esont-fa ordnwodpc-esold"vi s naplcssa-fa"=rdodpo-nw metifaord-nwodper-"ylpapsad natcne-edonil-d=kZ2L"tVncvF2LlGdjbvh9iZ3NnbIX8yNvjM0EzM2A"1alc a"=sst-fbo-oufacs19-et84 "7 issalc"=nocinoci ra--worpuel-"tfips nassalc"=d-faodpor-nwlper"yiRdnopsiapsnnapsaps n napslc =ssaa"d-fodpornweti-a mord-fdp-nwoylperot-s"ap n-atadneedocl-d"=kni2LncvZF2LtVGdjibvlh9NnbvIXZ3yNjM08M2AzL1Ez1EyIDOalc "=ss-fa"otbo-acsufet419-"78 i lc=ssanoci"ci a-no-fser-dnopot"i napslc=ssad-fa"pornwodr-lpe"ot-yRopsiidns a aplc n"=ssa-faresun-emaraM"eilH-en9489242s3nappsnasnappsna d vidvi', 'af_jsencrypt_30614'). I had to give up all exercise and walked only when absolutely necessary. Please use a different way to share. I still haven't tried amitriptyline mainly because my vulvodynia has become so very mild lately already so I didn't think it's necessary. No wonder I was in utter agony! I see Dr. Michalewski in Lakewood, NJ. perch la mia un po' contro queste cosecio preferisce le classiche cure 2 -Mi piace After viewing product detail pages, look here to find an easy way to navigate back to pages you are interested in. Not on the outside. There's also an oily cream called Cervagyn, I only use this when Dermol isn't working, or when I go out (it's just a smaller package). Sei in cerca di ispirazione? Read our editorial policy. I had six months of trailing round ten doctors none of whom knew what was wrong, three procedures under anaesthetic - all useless. (I used to use flora balancing bv gels almost constantly, acti gel, flora plus and boots brand stuff etc, they used to burn when I'd first put it on, and had other problems with them, but it was okay and that's why I lived with this curse for years, because it was 'okay'. Even now, 5 years later, I still apply coconut oil after every time I go to the toilet, use tonnes of oil based lube during intercourse, go around the house wear no knickers. I have vulvodynia and recurrent thrush. Vulvodynia literally means vulvar pain and is a condition of the nerves in that area. I am keeping fingers crossed the gel will help! There's still quite a bit left in the tube after 5 weeks so it's quite economical really. Nothing should Ben touching that area and making the nerves fire. I am currently very confused to try which approach. By the way, my GP said your husband must be very patient - as if men have sexual desires and needs that have to be met! But of course the vagina and vulvar have the most mucous membranes and I got the most pain there. That was what really worked for me - each time I went I just got better and better. :? All rights reserved. I had vulvodynia in 2013, and it was exactly as you describe. That was really helping me with the intercouse. Your recently viewed items and featured recommendations, Reviewed in the United States on November 6, 2016. You can change your choices at any time by visiting Cookie Preferences, as described in the Cookie Notice. I was symptom free for about 10 years but switched HRT 18 months ago and am still paying the price. :p) This might not mean anything to everybody else but I used to drink maybe 1 cup of water a day. He had tomato sauce in nearly every meal and his eczema has since cleared completely when he eliminated tomatoes from his diet. I can't say if this helped my vestibulodynia or not, since the burning disappeared overnight the day before this arrived in the post (it has since come back but very mild, for a short period of time, then disappeared again). 20.50 (683.33/l) In stock. I want to say that since I posted 3 days ago I am feeling ABSOLUTELY PERFECT! Products and information cannot be used to diagnose, treat, cure or prevent any health condition. Anyone have Pudendal Neuralgia or Vulvodynia?? Or my skin / body was just dying with thirstiness.. If this was a male illness you bet it would have been cured ages ago. I take probiotics and aloe juice. It is also important to remember that whatever works will take time - it will reduce the pain slowly and gradually - apparently 1.5 years is good! Dont even know what kind of doctor to go too. not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in Quite excited (probably too hopeful). And I never took it seriously. It's too soon to say I know, I always had on and off days in the last 8-10 years of this illness. I've used many things and they usually just cover up symptoms and not fix the underlying problem so it just happens over and over again. 113 users are following. You should not rely on such information, and it is not a substitute for advice from a medical professional. It feels a million times better than last week. Gine ha dettoChe tutto a posto. Jury is still out on that one. That gave me the hint that my problem might be diet-based. Io ho usato sempre il gel esterno ma nel tuo caso forse occorre spegnere l'infiammo. I had tons of yi in the past years, I can't remember which started first, and I hope if I can find the right diet I might get rid of both.! I don't want it to come back. I forgot to write about that - that in the interests of going all out and doing everything I could to cure myself I also went on a low oxalate diet for a couple of years. 29.00. I also only shower and never bath . I just wanted to share an update on my experiments. I have precisely that pain to the posterior of the vag opening. The consultant dermatologist was very impressed with me because I was so determined and didn't give into urges. i apply vaseline if i swim . Io ho usato sempre il gel esterno ma nel tuo caso forse occorre spegnere l'infiammo. These were the things that, over the years, she had found to be successful. You can edit your question or post anyway. I think your post may help those who do. vermoxchiedo informaziioni a chi l'ha usato ceftrioxone( principio della rocefin) antibiotico,chi l' ha usato??? It didnt bother me that I didnt know what was and wasnt working, all that mattered was that I was getting better. I am not made out of money! I think they sell them for people with piles. I do occassionally give in an have some hot chips (I'm only human!) He prescribed the amitriptyline (20mg) and steroid cream. Try our Symptom Checker Got any other symptoms? You are so right. I had the smear test and the pain came back full force - back to square 1. Way to make me worse than I already do, doc! ?One dose of Daktacort lasts a while, it may cause a runny feeling but it does work. I gradually reintroduced foods over the next week, and found that the symptoms slammed back about one hour after I ate some potato. 50ml Extender Cream for Men,Make Enhancement Cream,Enlargement Private Part Increases Energy Mood and Endurance,Larger and Longer For Male, PowerLocus Bluetooth Headphones Over Ear, Foldable Wireless Headphones, Hi-Fi Stereo Headphone with Deep Bass, Micro SD/TF, FM Radio & Wired mode, Built-in Microphones, Soft Earmuffs for Phone/PC, 1996-2023, Amazon.com, Inc. or its affiliates. Urinating didn't bother me, so I don't think Solanine gets excreted in the urine. Stress is so hard to pinpoint to connect with illnesses as it's not like a physical thing you can rub on your arm and see a visible reaction. Dear Suki girl. You are a star..many thanks for all the info. Lo hai mai usato internamente? So I slathered it on and it was delicious, enough for me to have seconds. I don't know if my problem can't be called vd if it is related to dermatology rather than nerve system. I had a hysterectomy a year ago due to fibroids. Toilet paper has bleach in it, so I got some tissues that were bleach free and used those to wipe after doing a wee. Worst, I lost my trust. Aufeminin, titolare del trattamento, raccoglie queste informazioni in modo da poterti inviare comunicazioni commerciali personalizzate, soggette ai tuoi interessi. I probably have subconscious thoughts like virginity is the nice honourable thing for a woman and premarital sex is bad. I would be very grateful if you could contact me privately re the lady dermo you have found.. Do hope this post will get through, it's the first time I have joined a forum! No exercise, no sex, only washing in the intimate area with water (I used coconut oil), no tight clothes - I work mainly from home so I was able to go around all day with no underpants on, just baggy jogging bottoms or a skirt. Like you say, there are a lot of such emolients and it is worth experimenting to find put what works for you. So I did some investigating to find someone else who could help me and found a dermatologist consultant in Oxford who specialised in vulva pain. If users want this information please use the Private Message service to request the details. She also told me that it is worth just trying everything. I have had many uti's in the last year and a half. And good on you for trying everything and finding three that worked for you. Makes me extra stressed on top of everything. is it a body lotion or a balm thanks, its an emollient (kind of lotion). I hope to reduce the dose sometime (gradually, by 5mg very 2 weeks, just like I built it up). (bangs head on the wall). To learn more about how and for what purposes Amazon uses personal information (such as Amazon Store order history), please visit our Privacy Notice. Stick with the amitriptyline, it will help with pain and sleeping. I also found a GP that also ran a Western acupuncture clinic. So glad to be rid of it. when I was saying it hurts so I can't have sex with him a lot. I can tell you what I did. Mi piace My first post has been deleted so must try harder not to mention products! I am also doing a candida diet, but not super strictly. So, massage yourself there just enough so as not to cause lasting pain afterwards. I'm battling vulvodynia as well, for many years. My mother has an allergy to tomatoes so maybe this is a big thing. She also told me to up my amitriptyline to 50mg because they have found that the amitriptyline and acupuncture work very well together in damping down the over active nerves. I cut out potato and the symptoms again eased, coming back whenever I ate potatos relatives, the other Solanacea plants of tomato, chilli, bell peppers or capsicum, and eggplants. I have ordered the gel you recommend from Italy, and it is now on a well known shopping website in the uk too, and a bit cheaper. less postage. Use of the forums is subject to our Terms of Use You also need to get drugs that work on the nerve from the inside - amitriptyline. For the first few hours after application I thought this was helping with the irritation and itching however within, maybe 4 hours (for some reason my reactions are always delayed - I think its called sensitization) everything was worse than ever, it caused a very bad flare up of the vulvodynia leaving me red, raw, itching and in pain. I am sure that stress is a contributory factor - I was very stressed when I got the persistent and recurring thrush which turned into vulvodynia. I found coconut oil soothing. The nerves have become hyperactive and hypersensitive due to trauma which can be chemical or physical in source or due to infection. Reviewed in the United Kingdom on 25 February 2022. I'm so pleased that you have found relief! Very interesting to see how you cured your vulvadynia, and sorry to hear you had such a difficult time. It's too soon to say if it will cure it but I am hopeful. I really ran out of my respect for doctors and the whole medical industry because of this type of behaviour. I've also known of one child who used to get horrible eczema. Here are some things I'd like to share in case it helps anyone else out there: I kept saying 'my' vulvodynia because everyone seems to have different issues, I believe mine is a dermatological issue since the creams help so much but these might not help everyone else. Specialist uk cushions help too. Also, there will be blips - recovery will be slow and steady if you stick at what works for you, but sometimes something will happen that makes it a bit worse again e.g. Solanine is the one I'm sensitive to, but they are all to some extent toxic. I pushed and saw another doc, who sadly has left and has left my practice with hardly any decent straight female g.ps left, I explained i was given eternal cream, (g.ps are fond of prescribing this, as it solves their problems. Over this last year I have been getting dryer down there and have found coconut oil (organic, raw, cold pressed) very helpful - you just get a blob of it on a clean finger and insert it - I do that after every time I go to the toilet. Please make sure that you've entered a valid question. All my life. Disclaimer: Information provided on this site is for reference only and is subject to change, or may be out-of-date. A week later it is slowly getting better bit by bit each day. I actually felt pain free enough to have my smear test - big mistake. I had that too. as being in breach of those terms. Not much of a water drinker. Please try again later. It is mainly about vaginismus, but the exercises apply to vulvodynia too - just don't do them sitting on a juggling ball (ouch) do them standing up first, then lying down, as it advises in the book. I watched a really helpful video yesterday:(How to use an elimination diet in vd management) that shows how to do find what food might be causing allergic reactions in our bodies. but it doesn't clear up yours plus it causes further damages if inserted internally, more burning etc, i asked the pharmacist who is more qualified. Reviewed in the United Kingdom on 20 February 2021. Lots of women on this forum have found coconut oil and vit e oil to be a great help. I wonder if those foods that caused you problems are high in oxalates? Gradually build up the exercises, doing more and more each time. Scusa le domande ma cerco di capire il nesso con il saginil . Tobacco is also one of this group, and although I don't smoke, I get return of the itch if I spend time in a place, such as a club, where tobacco is smoked. google search and it will show pharmacies selling it. But I am sure it is connected to most diseases. I have inflammation on my eyes, my scalp and face also are very sensitive. I am also still on 50mg amitriptyline a day. Reading all your info and crying at the same time. La spiegazione dello spotting?Aspecifica significa senza batteri, puo' darsi che la flogosi crea spotting nn so. They were: western acupuncture, physiotherapy, chiropraction and manual desensitisation. Thank you for sharing your experience; and its so good to hear of a good doctor and a positive experience. The nerves are so hypersensitive they register touch as pain and the usual way to diagnose it is to touch around the vulvar area with a cotton bud and where the touch registers as pain then that is the affected area. Il principio attivo del saginil serve a calmare la mucosa irritata inibendo una risposta immunitaria eccessiva , in genere con bruciori o calore . Also burns when walking but not as much or lying down. I am going to try estrogen cream next when I pluck up the courage to try again! It seems that as I grew older I could no longer de-toxify any of this family of foods, and by the time I reached menopause the problem had grown chronic. I have to stay away from night shade vegetables, dairy, gluten, eggs and beans. I really like that it just feels like a neutral gel. Good for you for pursuing a cure. Well, I wasn't going to put up with that for the rest of my life. It seems to me that, because you have other skin issues, you need to see a dermatologist. Si..ne ho sentito parlaresolo una domandama tu sei andata personalmente a informarti su questi prodotti..o te l'ha consigliato la ginecologa? respect of any healthcare matters. 10 users are following. jsdchtml3('dc visalfa"=sa-trelhgir-b-totto m-fa-tsopcanoit "s=ferh"uroftcamnoisnaew7r602413515564 " apsalc nssca"=-noitrap"tne ps nassalc"=p-fatsowsna-re-fa -tsopsna-rewotlgg-fa etbof-nmurb-fa ntrof-p--mumir yraocennUdetcesnOsr"ylpsiRnoidnaps naps vidalc"=ssfard-wodpo"n=di fa"pord-odr-nwnopse-es6024131-5"5645 idlc vssa-fa"=op-nipc-ntbsolci enolc-b-esont-fa ordnwodpc-esold"vi s naplcssa-fa"=rdodpo-nw metifaord-nwodper-"ylpapsad natcne-edonil-d=kZ2L"tVncvF2LlGdjbvh9iZ3NnbIX8yNvjM0EzM2A"1alc a"=sst-fbo-oufacs19-et84 "7 issalc"=nocinoci ra--worpuel-"tfips nassalc"=d-faodpor-nwlper"yiRdnopsiapsnnapsaps n napslc =ssaa"d-fodpornweti-a mord-fdp-nwoylperot-s"ap n-atadneedocl-d"=kni2LncvZF2LtVGdjibvlh9NnbvIXZ3yNjM08M2AzL1Ez1E1YDNalc "=ss-fa"otbo-acsufet419-"78 i lc=ssanoci"ci a-no-fser-dnopot"i napslc=ssad-fa"pornwodr-lpe"ot-yRopsiidns a aplc n"=ssa-faresun-emauoM"an7903435ps1nasnappsnasnap vididv', 'af_jsencrypt_30610'), 5 -Mi piace When I had a horrendous flare up last week I had been eating loads of tomatoes and peppers. I've been trying different things for years and even one more day is too much at this point. I live in the UK, by the way, and have private health cover. No,mi spiaceio sono un esperta di candida come molte ragazze quine ho sofferto per piu di un anno e mezzo di seguito in maniera grave,ma non ho mai sentito di questo prodotto..io ne sono uscita definitivamente,da piu di 2 anni senza nemmeno una ricaduta usando l omeopatia.. 3 -Mi piace I have been on the internet driving myself crazy. So I didn't see a chiropractor because is didn't thing it stemmed from a pelvic nerve problem, however, from what you describe, yours might. Poi ho letto sul forum e poi sul foglietto illustrativo che per uso topico. We want the forums to be a useful resource for our users but it is important to remember that the forums are If anything, my sexual desires are stronger than my hubbys and he doesnt give me enough!!! Glad you found solutions for yourself. Mine was food related. Neuropathic pain can be very hard to get rid of. i was surprised because, appears from upping the amitriptyline dose to 50-70mg a day (I was on 20), the rest of the things were what you would class alternative, or natural, cures. It can also cause depression. Also agree about excercise i walk a minimum of an hour a day . Always speak to your doctor before acting and in cases of emergency seek Why did it cause vulvar pain? The gynaecologist gave me lynocaine cream to numb the area, but that stung me and made me worse. With all your info I will be making a plan and trying to be positive. Apparently the amitriptyline and the acupuncture work well together to dampen down those hyperactive and oversensitive nerves. I wanted to try the low oxalate diet, just found out about it while googling, but my gp dismissed it, and any other holistic approach really. Deep breaths have been the best for me but they are so momentary. By that time I had used the steroid cream for as long as is recommended and had stopped it (long term use not recommended). It gets very good reviews.I first read about it in a vulvodynia site where it was highly recommended.